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Participate in Research at Holland Bloorview

Holland Bloorview’s research institute conducts need-based and ground breaking health research to make a real-world impact in the lives of children and youth with a disability, and their families.

Select from the categories below to find a research study that is right for you – there are many opportunities to get involved.

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Find a research study

To find studies most relevant to you and/or your child, use the filters below to choose diagnoses and/or research areas that meet your interests.

Diagnosis or medical condition
Research Area
 

List of research studies

Parent perspectives on advance care planning for an individual with cerebral palsy

Summary:

This study is about understanding what parents of children with cerebral palsy (CP) think about having advance care planning conversations with their health-care providers. Advance care planning may help families better understand their child's diagnosis and prognosis and then use that knowledge to think, talk and plan for possible future educational, financial, health and medical issues that my arise. The purpose of this research is to help us understand what parents think about having advance care planning conversations and to guide clinicians about what should be discussed, when these topics should be raised, and with whom families prefer to have these conversations.

 

Participate in this study:

How should we talk with parents of children with cerebral plays about advance care planning? Join our study and let us know.

 

Reconsidering clown practices in children’s hospitals

Summary:

Have you hung out with Dr. Flap and Nurse Flutter lately?  Consider participating in our study!

We're looking to explore the silly and “foolish” ways therapeutic clowns and kids play together in the hospital and how kids experience this playing.

Delivering specialty care access through use of an innovative telehealth-home based intervention feeding program (telefeeding) to address food selectivity in Autism Spectrum Disorder

Summary:

We are trying to determine if we can deliver a feeding intervention program using videoconferencing technology. We hope to learn if parent coaching around feeding strategies will lead to a change in difficult mealtime behaviours in children diagnosed with Autism Spectrum Disorder.

Participate in this study:

“Is your child a picky eater? Consider participating in a research study to treat feeding challenges in children diagnosed with Autism Spectrum Disorder.”

Engaging parents and providers in the selection of evidence-based interventions: Improving transition to developmental/rehabilitation services

Summary:

Parents/guardians of children with developmental disabilities experience high levels of stress when transitioning to rehab services. We want to get your opinion on programs that might be able to improve parents'/guardians' transition experiences. 

Participate in this study:

To ask questions or sign up, contact Amie Kron at akron@hollandbloorview.ca or 416-425-6220 ext. 3011. 

Interbrain Electroencephalography (EEG) Signal Synchronization among Non-verbal Children/Youth with Severe Disabilities, their Parents, and Music Therapists

Summary:

We would like to measure brainwaves synchrony with electroencephalography (EEG) between non-verbal child/youth with complex disability, their primary caregivers, and music therapist during music therapy and storytelling sessions. The results of this study may help to understand how children/ youth with non-verbal complex disability build empathy and communicate their needs with their caregivers and therapists. We would like to invite you and your child to be one of the families who participate.

Participate in this study:

Do you want to help us learn more about brainwaves synchrony in two dyads: Non-verbal child/youth and parent, and non-verbal child/youth and therapist?