We are currently developing a wearable biofeedback system for use with lower-limb prostheses. Once developed the biofeedback system could serve as a training tool for lower-limb amputees to improve gait and balance.
Do you want to help kids with cerebral palsy and complex communication needs? Consider participating in a research study about developing a novel access technology personalizable at home.
A randomized placebo-controlled trial of arbaclofen vs. placebo in the treatment of children and adolescents with ASD.
We are currently investigating a study drug called arboclofen to improve social functioning in children and teens with Autism.
A randomized placebo-controlled trial of tideglusib vs. placebo in the treatment of adolescents with ASD - Cloned
Currently conducting clinical trials to investigate whether a drug called tideglusib helps to improve symptoms of Autism Spectrum Disorder, specifically social engagement, social function, and repetitive behaviours.
Accuracy of community pediatricians’ diagnosis of developmental concerns compared to a multi- disciplinary team assessment
We are studying how we identify and diagnose children with developmental concerns in Ontario.
Childhood Cerebral Palsy Integrated Neuroscience Discovery Network “CP-NET” – Clinical Database Platforms
The Childhood Cerebral Palsy (CP) Integrated Neuroscience Discovery Network “CP-NET” is designed to bring together children with CP, their families, and clinical and basic scientists to foster neuroscience discoveries through integrated translation. Understanding the underlying neuroscience mechanisms, pathology, physiology, and genomics of CP is critical to developing improved treatments. In particular there is a critical need to link translationally-oriented neuroscience research with cutting-edge neurorehabilitation approaches for CP.
We are looking into a better design for communication aid displays. We hope this will allow
people who rely on communication aids communicate faster with less frustration.
people who rely on communication aids communicate faster with less frustration.
We want to learn from youth with disabilities about their views on patient engagement in research – what it means to them and how we can support this.
Enhancing Care for Young People with Muscular Dystrophy: Addressing the Human Dimensions of Progressive Illness Experience
This project aims to explore and enhance compassionate care for young people with muscular dystrophy (MD) and their families.
We want to understand your experiences looking for work or being employed. Specifically, we want to understand your experiences with coping in a competitive work environment. In addition, we want to learn about disability disclosure and how youth with disabilities ask for accommodations in the workplace.
We want to understand your experiences in looking for work or being employed. We want to learn about disability disclosure and how to ask for accommodations.
We want to understand your experiences in providing workplace accommodations and areas that you need help with in providing accommodations to young people with physical disabilities.
Health and wellness are important aspects of the care provided to children and youth with CP at Holland Bloorview. Yet despite its importance incorporating a wellness approach into clinical practice remains a challenge. Barriers such as lack of resources and time, uncertainty regarding how to prioritize wellness aims, and how to address the diverse and individual needs of children and families, can interfere with wellness promotion. Our study will partner with clinicians, children and families to collaboratively identify and attend to the wellness needs and aspirations of children with CP and families , toward the delivery of holistic, family and child-centred care. In this study “wellness” refers to the emotional, existential, social, and moral dimensions of illness experiences and care that co-exist with the physical/biological and technical dimensions. Our goal in the study is to partner with practitioners, young people and families to explore what wellness means to them, how wellness does/can align with clinical care, and to identify approaches, techniques and tools for collaboratively enhancing wellness.
This study is testing how easy it is to set up and use a new wireless vocal cord vibration switch and how helpful the training materials are. The switch has a sensor in a neckband that detects when a user makes a ‘hum’ sound.
Experiences of working, volunteering and unemployment during Covid-19 pandemic among youth and young adults
We want youth’s input on their experiences of working, volunteering and unemployment during the Covid-19 pandemic.
The research team at Holland Bloorview developed an e-Learning module called Teach ABI. This module is created for educators to support students with Acquired Brain Injury (ABI). The objective is to raise Ontario educators’ awareness and knowledge of ABI and promote positive outcomes for children with ABI in the education system.
We have learnt that children with disabilities and weight management and wellness needs, along with their families often experience challenges and difficulties accessing health and wellness support and/or weight programs.
Our genomics study will identify and characterize genes that confer risk to autism spectrum and related neurodevelopmental disorders.
Group Social ABCs for toddlers with suspected or diagnosed Autism: Evaluation of a clinic-based behavioural intervention
We are studying a shortened, group version of the Social ABCs to see if it works. Parents will learn the strategies of the intervention through a combination of group workshops and individual practice sessions over a six-week period.
Helping Hand: The effectiveness of a modified Constraint-Induced Movement Therapy program for children with acquired brain injury
Exploring the use of using constraint induced movement therapy to improve upper extremity functioning and occupational performance in children following acquired brain injury.
Left in the waiting room: A pilot study of a digital intervention pilot for siblings of children with special needs
The research team at Holland Bloorview Kids Rehabilitation Hospital would like to invite you to participate in an intervention called i-SibworkS, an e-health and peer support group intervention led by clinicians to serve the mental health needs of siblings of children and youth with special needs.
Has your child been diagnosed with cerebral palsy? Your child may be eligible to participate in a randomized controlled clinical trial that will investigate the effectiveness of a medication called metformin, and whether it helps to improve your child’s movement and thinking skills.
Move and Connect: Developing an Instructional Resource for a Group-based Active Rehabilitation Youth Program
The research team at Holland Bloorview Kids Rehabilitation Hospital would like your knowledge and insight to help design an instructional resource that facilitates the delivery of an active rehabilitation group-based program named Move&Connect.
Partners for enhancing healthy and productive work for people with disabilities: Simulation and toolkit development
We want youth's input in developing an evidence-based toolkit to help youth with disabilities to learn how and when to disclose their condition to potential employers.
Partners for enhancing healthy and productive work for young men and women with disabilities: Simulation and toolkit evaluation phase [Clinician]
We want clinicians’ input in evaluating an evidence-based toolkit to engage youth with disabilities in vocational rehabilitation (e.g. rapport development, gender-role expectations, self-advocacy, career development, disclosure decisions).
Partners for enhancing healthy and productive work for young men and women with disabilities: Simulation and toolkit evaluation phase [Employer]
We want employers’ input in evaluating an evidence-based toolkit to help employers to engage in disability disclosure discussions with their employees, helping to enhance disability confidence and sensitivity.
Partners for enhancing healthy and productive work for young men and women with disabilities: Simulation and toolkit evaluation phase [Youth]
We want youth’s input in evaluating an evidence-based toolkit to help youth with disabilities to learn how and when to disclose their condition to potential employers.
We are collecting information to help in our understanding of how genes, brain and bodies are different if a person has a neurodevelopmental disorder or is typically developing.
To understand how genes affect the brain, body, and behavior and translate this understanding into new ways to help individuals with autism and associated neurodevelopmental disorders.
R2Play: A simulated sports environment to support return-to-play decision-making following youth concussion
The research team at Holland Bloorview is developing a simulated environment assessment to help youth with concussion return to their sport life (return-to-play). The software R2Play will be designed using your thoughts and feedback. This study involves participating one hour interview session at Holland Bloorview Kids Rehabilitation Hospital.
Our research team thinks that you can help us understand the ways in which children/youth and parents/caregivers feel involved and not involved in their appointments.
We are looking into a better design for communication aid displays. We hope this will allow people who rely on communication aids communicate faster with less frustration
This study looks at two different “apps” to help young people practice fine motor skills at home – Dexteria and Spell Tracer. In both apps, kids trace patterns on a tablet. Spell Tracer includes many features similar to video games. We want to know if designing therapy games to be more like entertainment video games impacts kids’ experience of the activity.
Cerebral palsy (CP) is the most frequent cause of physical disability in children in Canada, affecting 2-2.5/1000 children every year. This project aims to establish a Canadian Cerebral Palsy Registry, to provide an epidemiologic profile of CP in Canada reflecting the full heterogeneity of the disorder and provide a platform for population-based research on CP. It will serve to estimate the incidence, prevalence and distribution of cerebral palsy in Canada, while facilitating research in this field.
We want to explore what health and wellness means to young people with spina bifida and what health activities are important in their everyday lives. We want to hear about what sort of things you do or want to do to be healthy and feel good.
We want parents/guardians (any adult family member in a caregiving role) of Bloorview clients ages 12 to 25 to complete a 5-minute survey two times to tell us what they think of their child’s transition readiness.
Our team would like to learn about transportation experiences of youth with and without disabilities. We would particularly like to know what it is like to navigate public transportation independently and / or the process of obtaining a driver's license.
Understanding pain trajectories and their association with well-being in children and youth with cerebral palsy
We are asking children and youth with cerebral palsy to help us learn about if they hurt and if it affects them. This study will help us better understand about if and how much pain is felt by children and youth with cerebral palsy.
Usability Study - Teaching Educators about Acquired Brain Injury (Teach-ABI): A Healthier Classroom for All
The NOvEL Lab is conducting usability testing of an online e-Learning module for Ontario educators about acquired brain injury (Teach-ABI). The objective of the Teach-ABI module is to raise Ontario educators’ awareness and knowledge of ABI and promote positive outcomes for children with ABI in the education system.
What are the Mental Health and Wellness Needs of Young Adults with Spina Bifida? A Stakeholder Engagement Workshop
Researchers from the Bloorview Research Institute would like to invite you to take part in a study about mental health and wellness in young adults with spina bifida. Parents of children or youth with spina bifida are invited to participate in a focus group to discuss findings from a review of the research literature about mental health and wellness in young adults with spina bifida.
We will study the needs, challenges, and approaches used to position preschoolers with disabilities for bathing activities at home. Focus groups with groups of parents and therapists will give us a practical way to evaluate and develop better bath products for young children with seating needs.
Workplace disability disclosure decisions among youth and young adults with Autism Spectrum Disorder
In this study, we are looking to explore the needs of youth with autism related to making disclosure decisions about their autism diagnosis at work. We want to know what youth need to help make disclosure decisions in the workplace.
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