Navigating the Medical and Social Merry-Go-Round: Understanding the Caregiving Experiences of Parents from Racialized Backgrounds that Care for Children Living with Autism Spectrum Disorder (ASD)
Summary
The HEART Lab at Holland Bloorview is doing a study to understand the caregiving experiences of parents who identify as coming from a racialized background and care for a child with autism. In the study, you will be asked to discuss your caregiving e xperiences in which we will explore topics such as cultural stigma. In this study you will also participate in an art activity in which you can express your experiences.
Researcher(s)
Dr. Fiona Moola
Call to action
Are you a parent that identifies as coming from a racialized background, caring for a child with autism ? If so, do you want to participate in a study about your caregiving experiences.
Who can participate
Parents / Caregivers who identify as coming from a racialized b ackground, caring for a child with Autism
What's involved
- A two hour interview that asks about your caregiving experiences (e.g. stigma, healthcare experiences)
- A one hour take home art activity
- Using a range of art supplies
- How many visits are involved?
- 1-2
Note: If you cannot make it to the hospital, we can also arrange an interview online via video conferencing, or via phone.
Participants will be reimbursed for travel costs and receive an honorarium to thank them for their time.
Deadline
Interested in participating
If you are interested in participating in this study or have additional questions, please contact the following individuals with your interest, and they will get back to your shortly.
- Dr. Fiona Moola - fmoola@hollandbloorview.ca
- Nivatha Moothathamby - nmoothathamby@hollandbloorview.ca
- Methuna Naganathan - mnaganathan@hollandbloorview.ca
Contacting us does not obligate you or your child to participate in the study.
Additional information
Potential benefits
- Potential development of an intervention to help build social support among racialized parents
- Deeper und erstanding of the effects of cultural stigma on parents who are caring for a child with Autism
Potential risks
- There are no risks or harms known for participating in this study. But, you may feel sad or uncomfortable when talking about your experiences during the interview or art activity. You can stop at any time for any reason if you feel this way.
