Autism Care Network (ACNet)
Holland Bloorview is part of the Autism Care Network (ACNet), previously called the Autism Learning Health Network (ALHN). The Autism Care Network (ACNet) is a Learning Health Network comprised of more than 20 clinics across the Unites States and Canada dedicated to developing a sustainable system for care delivery, research, evidence development and dissemination of best practices for autistic children and adolescents. Learn more about the Autism Care Network (ACNet) here.
This network will collect information about the health, wellbeing, and behaviour of children with ASD over time, allowing the network to better understand what services, supports or interventions are helpful and which are not.
The researchers will use this information for quality improvement projects which they hope will improve care for your child and all children with ASD now and in the future.
Researcher
Site PI: Melanie Penner MD FRCP(C)
Who can participate
Clients of Holland Bloorview accessing ongoing care in the Psychopharmacology or Communication, Learning and Behaviour (CLB) clinics, or who have been referred to a CLB Social Work group, with a diagnosis of ASD between the ages of 18 months – 17.5 years.
Deadline
March 2023
Interested in participating
If you are interested in participating or have any questions, please contact Catherine Bosyj
at cbosyj@hollandbloorview.ca.
Funding Agency
This study is funded by Autism Speaks Inc.
Resources, Publications and Toolkits
ATN-AIRP Resources
Toolkits have been developed to help address real-life challenges and issues related to children with autism spectrum disorder, including sleep, medication, toilet training, feeding and more. Toolkits are developed for professionals and families. In June 2018, Holland Bloorview, in collaboration with ATN and AIRP, published an Advocacy Toolkit for parents of children and youth with autism spectrum disorder (ASD) and other neurodevelopmental disorders (NDDs).
