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'We know about the stress, the frustration and the exhaustion of families. What we found in this study that was quite new was the trauma, upset and anger.'
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Monica is one of 80 Family Leaders, a group of volunteers who use their lived experience to partner with teams across the hospital and Bloorview Research Institute to make positive change across the health care system.
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Share your experience, make a difference and help other families.
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Gabriela Masri Ahmar shares how lived experience shapes her approach to inclusive childhood disability research
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Holland Bloorview’s commitment to high-reliability care contributes to milestone safety achievement
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A bike ride left this Toronto teen paralyzed. He’s inspiring others with his message of resilience and hope
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Access video and cases created by health care employees and organizations in Ontario
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Read our latest stories, with links to mainstream disability news and shout-outs to people making the world more inclusive.
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Five-year chair supports work to promote youth and family engagement in learning health systems
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