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BLOOM combines real family stories with the best expert advice, plus the latest news and opinion on disability.
In complex care, 'no two children are the same'
'Our families have been through a trauma. What their needs look like afterwards vary significantly.'
A letter to my Bubbie
Laura Rosen Cohen has a teenaged son with a rare genetic disorder. This is a letter she wrote to her late grandmother, who was and remain...
Why home nursing is not respite for one mom
By Marcy WhiteIt looks good on paper.After a year in hospital with machines helping him breathe and tubes sucking out mucous that clogs h...
How does disability enter into care decisions about preemies?
Last week I read this post called One Size Does Not Fit All about “shared decision-making” between parents and medical staff in a neo...
I wish I'd seen the beauty of sign language years ago
Last night was fun. I got to tell a story in American Sign Language (ASL) about a funny incident that happened when I was a teen. I was d...
What do disabled youth say about friendship?
Youth with disabilities tend to have fewer friends and smaller social networks than their peers. And studies find that typical youth are ...
Clinicians must better respect children's 'agency,' ethicist says
The other day my son had an interview to volunteer in a cat adoption centre in a PetSmart.He can't speak and doesn't have a robust form o...
More than meets the eye
By Sue RobinsThere's been a tropical storm on the Hawaiian island of Kaua'i and the one-lane bridge to the North Shore is washed out.We'r...
'I was raising him on my own'
Here is the second video in A Family Like Mine, a new BLOOM series covering diverse families raising children with disabilities. Meet Jos...
The story behind Robert Munsch's 'Love You Forever'
I made up my own melody. When my son was born with "unusual features" and a suspected genetic condition, Robert Munsch's Love You Forever...
Parent, advocate takes on role at London's Children's Hospital
“It's a dream job,” Darren Connolly says, and it's a world away from the bank call centre where he once worked. Darren is the new fam...
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