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Participate in Research at Holland Bloorview

Holland Bloorview’s research institute conducts need-based and ground breaking health research to make a real-world impact in the lives of children and youth with a disability, and their families.

Select from the categories below to find a research study that is right for you – there are many opportunities to get involved.

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Find a research study

To find studies most relevant to you and/or your child, use the filters below to choose diagnoses and/or research areas that meet your interests.

Diagnosis or medical condition
Research Area
 

List of research studies

Parent perspectives on advance care planning for an individual with cerebral palsy

Summary:

This study is about understanding what parents of children with cerebral palsy (CP) think about having advance care planning conversations with their health-care providers. Advance care planning may help families better understand their child's diagnosis and prognosis and then use that knowledge to think, talk and plan for possible future educational, financial, health and medical issues that my arise. The purpose of this research is to help us understand what parents think about having advance care planning conversations and to guide clinicians about what should be discussed, when these topics should be raised, and with whom families prefer to have these conversations.

Participate in this study:

How should we talk with parents of children with cerebral plays about advance care planning? Join our study and let us know.

Province of Ontario Neurodevelopmental Disorders-Network (POND-Network)

Summary:

To understand how genes affect the brain, body, and behavior and translate this understanding into new ways to help individuals with autism and associated neurodevelopmental disorders.

Participate in this study:

The study has many options and involves genetics testing, imaging, detailed behavioral assessments & questionnaires, measuring anxiety and possibly participating in a medication trial.


Concussion Reporting and Social Support: The Validation of a Novel Concussion Survey

Summary:

We have developed a new concussion survey to understand high school student’s thoughts on concussion reporting and how they can support a friend who has had a concussion. We want to learn more about high school students’ knowledge, attitudes, and intended behaviours about concussion. 

Participate in this study:

Are you a high school student? Do you want to complete a survey on concussions? Considering participating in our study.

KneuroKnits: Evaluating social participation and anxiety response associated with participation in a knitting group for youth with neurological conditions (pilot study)

Summary:

The study will look to understand the social participation and anxiety responses associated with a 4-week group knitting program for youth with neurodevelopmental disorders, physical disabilities, and acquired brain injuries.

Participate in this study:

Are you a youth with a neurodevelopmental disorder, physical disability, or acquired brain injury interested in learning a new skill and interacting with other youths Participate in our KneuroKnits knitting program!

Reconsidering clown practices in children’s hospitals

Summary:

Have you hung out with Dr. Flap and Nurse Flutter lately?  Consider participating in our study!

We're looking to explore the silly and “foolish” ways therapeutic clowns and kids play together in the hospital and how kids experience this playing.