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Participate in Research at Holland Bloorview

The Bloorview Research Institute is conducting need-based and ground breaking health research. There are many opportunities for research participation in our ongoing studies.

Continue reading to get answers to many Frequently Asked Questions about participating in research.

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Finding the Right Research Study

To find the studies that are relevant to you, use the filters to choose any diagnoses and/or research areas that reflect your interest.  

To view current studies that are not actively recruiting, uncheck the “Actively Recruiting” filter and all Bloorview Research Institute research studies will be displayed.

Diagnosis or medical condition
Research Area
 

List of research studies

Genetic Analysis of Autism Spectrum and Associated Neurodevelopmental Disorders

Summary:

Our genomics study will identify and characterize genes that confer risk to autism spectrum and related neurodevelopmental disorders. With this knowledge there will be an enhanced biological understanding of ASD, which we believe will facilitate earlier diagnosis and suggest opportunities for therapeutic interventions.

BeFAST or BeSTRONG

Summary:

We are doing a research study at Holland Bloorview to learn how activity of the brain changes after two different programs of walking based training. We will also study change in movement and participation to see if these changes are linked to brain change.

     

Participate in this study:

Participate in a research study looking at changes in brain activity and walking-based outcomes after lower limb training programs!

Using functional Near-Infrared Spectroscopy (fNIRS) to measure brain activity during dual-task performance in pediatric concussion patients

Summary:

There is evident alterations in brain function following mild traumatic brain injury (mTBI). It is of particular concern in the pediatric population with nearly 60% of children continuing to experience symptoms one month after injury. Currently, rehabilitation and return-to-life protocols use subjective self-measures of recovery. However recovery of symptoms may not coincide with recovery of brain function. There is evidence in changes in brain function during attention and memory tasks in youth following mTBI compared to controls. Furthermore, performance on tasks tends to suffer more during dual-task paradigms, where the brain is challenged to complete two tasks concurrently. This evidence comes from the use of functional magnetic resonance imaging (fMRI) which has given some insight into the underlying brain alterations following mTBI's. However, fMRI is expensive and is limited to positions where the patient is required to lie still. An inexpensive and accessible technique, functional near infrared spectroscopy (fNIRS), may be an alternate technique to measure brain function. This study will use fNIRS while completing a dual-task paradigm that combines an attention task (Stroop Interference Task) with the Clinical Test of Sensory Integration and Balance (postural sway). We believe that by monitoring brain function using fNIRS we will be able to better understand the underlying alterations caused by mTBI.  


Participate in this study:

Do you want to help us learn what happens to the brain after a concussion? Consider participating in a research study about measuring and analyzing brain activity in youth.

What is this study about:
• We are conducting a research study looking at brain activity in youth during recovery from a concussion.
• We will compare brain activity measured from youth with and without concussion.
• We are using a technology called Near Infrared Spectroscopy (NIRS) to measure brain activity.
• There are no known harms associated with NIRS. 


Promoting social inclusion experiences in recreation settings for children with disabilities through the arts

Summary:

This study explores the perspectives of children with and without disabilities on their social inclusion experiences in the Spiral Garden program at Holland Bloorview Kids Rehabilitation Hospital.

 

Participate in this study:

Is your child participating in the Spiral Garden program? Consider having your child share their experiences in this study about how their experience in the program influences their sense of belonging, attitude toward disability and social skills.


Enhancing Care for Young People with Muscular Dystrophy: Addressing the Human Dimensions of Progressive Illness Experience

Summary:

This project aims to explore and enhance compassionate care for young people with muscular dystrophy (MD) and their families.  It does so through a collaborative research study that engages professionals in a process of reflexivity towards understanding clinical care as a process that opens and closes opportunities to attend to the human dimensions of living with MD.  This will be achieved through observations of clinical care integrated with 3 structured dialogues with interdisciplinary staff to explore practices and effect meaningful change. The outcome will take the form of collaboratively developed recommendations for the care of young people with MD.

Bloorview Research Institute

Parents: Interested in Getting Involved? 

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