The 19th Annual BRI Symposium
Innovating for Global Impact: 20 years of transforming childhood-onset disability research with families and communities
The Bloorview Research Institute is pleased to host its 19th annual BRI Symposium on November 7 and 8th at Holland Bloorview Kids Rehabilitation Hospital’s Conference Centre.
This year marks 20 years of remarkable research and innovation at Canada’s largest hospital-based research institute in pediatric disability and developmental differences research.
Held in-person and virtually, the BRI Symposium showcases the latest advances, research innovations and breakthroughs in the field of pediatric disability and developmental differences co-created in partnership with children and youth and their families.
This year’s symposium will be co-hosted by Dr. Evdokia Anagnostou, vice president of research and director of the Bloorview Research Institute, Peter Welsh, a family leader, and Austin Cosgrove, a youth research advisor.
The symposium is generously sponsored by:
- Autism Science Foundation Canada, gold sponsor
- Acadia Pharmaceuticals Canada, gold sponsor
- PlaySpace, silver sponsor
Gold Sponsors
Silver Sponsor
You can watch the livestream broadcast now:
November 7, 2024
9:00 am – 4:30 pm
Holland Bloorview Kids Rehabilitation Hospital Conference Centre (Hybrid)
Innovating for Global Impact: 20 years of transforming childhood-onset disability research with families and communities
Time | Event |
8:15 – 9:00 am | Registration and networking breakfast |
9:00 – 9:15 am | Meeting Opening
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9:15 – 9:30 am | Welcoming Remarks |
9:30 – 10:00 am | 20th Anniversary of the Bloorview Research Institute |
10:00 – 11:00 am | Mickey Milner International Professorship Lecture MicroResearch: Community Health Research and Opportunities to Improve Disability Care in Africa Dr. Robert Bortolussi, professor emeritus, Dalhousie University, and co-founder, MicroResearch Centre, IWK Health Centre |
11:00 – 11:15 am | Refreshment and networking break |
11:15 – 11:45 am | Leveraging Local and International Resources in Rare Neurodevelopmental Disorders Toward New Therapies |
11:45 am – 12:30 pm | Student/Trainee Presentations
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12:30 – 1:00 pm | Networking Lunch and Research Poster Sessions |
1:00 – 2:00 pm | Research Poster Presentations (in-person only) |
2:00 – 3:30 pm | Breakout Sessions Breakout Session #1 - Conference Centre (hybrid)
Moderator: Dolly Menna-Dack, senior director, collaborative practice, Holland Bloorview Kids Rehabilitation Hospital
Moderator: Christa Studzinski, director, business development & partnerships, Ontario Brain Institute
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3:30 – 3:45 pm | Refreshment and networking break |
3:45 – 4:45 pm | BRI Research Talks |
5:00 – 6:30 pm | Evening Reception (Coriat Atrium and cafeteria) |
Thursday, November 7
5:00 to 6:30 pm
Conference Centre and Coriat Atrium (in-person only)
5:00 to 5:10 pm | Welcome Remarks and Reception Opening Dr. Evdokia Anagnostou, vice president, research, and director, Bloorview Research Institute
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5:10 to 5:20 pm | Guest Remarks Dr. Morris Milner, former vice president of research, Holland Bloorview |
5:20 to 5:35 pm | Lived Experience Talk and Musical Performance
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5:35 to 5:45 pm | Musical Performance
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5:45 to 6:30 pm | Mix and mingle, demo showcase |
6:30 pm | Evening reception concludes |
Friday, November 8, 2024
9:00 am – 4:30 pm
Holland Bloorview Kids Rehabilitation Hospital Conference Centre (Hybrid)
Innovating for Global Impact: 20 years of transforming childhood-onset disability research with families and communities
Time | Event |
8:30 – 9:00 am | Networking |
9:00 – 9:15 am | Welcoming Remarks
|
9:15 – 10:45 am | Pursuit Awards Presentations
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10:45 – 11:00 am | Refreshment and networking break |
11:00 am – 12 pm | Family Engagement in Research at Holland Bloorview
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12 to 12:30 pm | Lunch |
12:30 to 1 pm | Research Poster Presentations (in-person only) |
1:00 to 2:00 pm | Implementation Science Keynote Presentation Reflections on Equity and Justice in Implementation Science and Practice
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2:00 to 2:45 pm | Student/Trainee Presentations
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2:45 to 3:00 pm | Networking break |
3:00 to 3:45 pm | Awards Ceremony
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3:45 – 4:45 pm | BRI Research Talks
Expanding the World of Possibility |
4:45 pm | Closing remarks
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Download the accessible program booklet.
*Please note the booklet's content reflects the information available at time of printing. Please refer to the BRI Symposium event webpage for the latest updates.
Dr. Robert Bortolussi, FRCP(C), professor emeritus, Dalhousie University and co-founder of MicroResearch Centre, IWK Health Centre
MicroResearch: Community Health Research and Opportunities to Improve Disability Care in Africa
This session will explore the MicroResearch Community Health Research program. MicroResearch ensures small research projects will have a real impact on health. This talk will specifically highlight potential opportunities to improve disability care in Africa by using local health care professionals to find sustainable solutions to local health problems using community focused research.
Biography
Dr. Bortolussi is a former vice president of research of the IWK Health Centre and is professor emeritus of paediatrics at Dalhousie University. He edited “The Handbook for Clinician Scientists” which is used in many universities in Canada and as part of the MicroResearch curriculum. He is a fellow of Canadian Academy of Health Sciences and president of the global health ection of the Canadian Paediatric Society. He is presently the editor of Clinical and Investigative Medicine (CIM).
Dr. Sobia Khan, Director of Implementation, The Center for Implementation
Reflections on equity and justice in implementation science and practice
This talk will provide an introduction to implementation science and practice, focusing on the importance of equity and justice throughout the implementation process, in the development of relationships, and in the systems, structures and ideologies that underpin implementation work. Dr. Khan will provide an overview of the equity iceberg to dive deeper into these topics, and will introduce key reflection questions and considerations to embed equity and justice into all aspects of implementation research and practice.
Biography
Dr. Sobia Khan is an award-winning global expert on how to practically implement complex interventions in complex systems. Dr. Khan emphasizes pragmatic and equity-driven approaches, with a particular focus on the need for relationship building, advocacy, and collective action to create change at all levels of the system. Dr. Khan has worked on over 100 implementation research and practice projects in multiple fields and various levels of the system. In addition, Dr. Khan is internationally recognized for transforming the landscape of implementation training by distilling science into practice. She has developed world-renowned courses on how to practically implement in organizations, communities, and systems — the only training of its kind. She holds an MPH from the University of Waterloo and a PhD from the Institute for Health Policy, Management and Evaluation at the University of Toronto.
This keynote is generously sponsored by Autism Science Foundation Canada.
Dr. Tim Benke, Ponzio Family Endowed Chair in Neurology Research; medical director, Rett Clinic and research director, Neuroscience Institute, Children’s Hospital Colorado; professor of pediatrics, neurology, pharmacology and otolaryngology, University of Colorado School of Medicine.
Leveraging Local and International Resources in Rare Neurodevelopmental Disorders Toward New Therapies
This talk will describe how specific resources supported the path towards approval of new therapies in rare neurodevelopmental disorders. These resources included local and international patient support groups and clinical resource infrastructures. The focus is on the challenges of uniting patient-centric priorities with local infrastructure and regulatory (FDA) requirements.
Biography
Tim Benke is Ponzio Family Chair in neurology research and professor of pediatrics, pharmacology, neurology and otolaryngology at University of Colorado School of Medicine. He joined the University of Colorado, School of Medicine and Children’s Hospital Colorado (CHCO) in 2002 where he is research director of the Neuroscience Institute. He initiated the multi-disciplinary Rett/CDKL5/FOXG1 Clinic in 2011 at CHCO (recognized as a center of excellence), where he is the medical director. Dr. Benke was site principal investigator for the NIH-funded Natural History Study and collaborated in clinical trials and outcome measure development in RTT and CDKL5. He is leading the male RTT project funded by IRSF and RMRA. His translational lab collaboratively studies the impact of early-life seizures and CDKL5 on synaptic plasticity.
This talk is generously sponsored by Acadia Pharmaceuticals Canada
Thursday, November 7
Dr. Jessica Brian, Senior Clinician Scientist; Psychologist, Bloorview Research Institute
It was twenty years ago today: The research journey from earliest detection to early intervention for toddlers with emerging autism and related social communication needs
This presentation will take attendees along a research journey from investigating the very earliest signs of emerging autism in babies and toddlers, through the development of a caregiver-mediated intervention and its implementation in Canada and beyond. The presentation will highlight the developmental trajectory of this longitudinal program of research, concluding with lessons learned and next steps.
Biography
Dr. Jessica Brian a clinical psychologist and senior clinician-scientist at Holland Bloorview, where she co-leads the Autism Research Centre at the Bloorview Research Institute. Dr. Brian is also associate professor, University of Toronto, Department of Paediatrics, with affiliations at Hospital for Sick Children and the Ontario Institute for Studies in Education (OISE/UofT). She specializes in neurodevelopmental disabilities with a particular interest in early identification and intervention in autism spectrum disorder (ASD). Dr. Brian has spent the past 25 years collaborating in a pan-Canadian longitudinal research program that explores the development of children at elevated likelihood for ASD (Infant Siblings Study), who are followed from infancy into adolescence. Informed by this early identification work, Dr. Brian co-developed the Social ABCs, a caregiver-mediated intervention for toddlers with emerging autism or related challenges. She has a long history of teaching graduate students, clinical trainees, and community providers in topics related to early detection, assessment, diagnosis, intervention, and supports for autistic children and youth and their families.
Dr. Tom Chau, distinguished senior scientist, Bloorview Research Institute
20/20 hindsight: fabrics, fractality & forces – where we should have gone
Reflecting upon the last 20 years of research in pediatric rehabilitation intelligent systems (PRISM Lab) at Holland Bloorview, this talk will present a central thread that perhaps has been stringing together, inconspicuously, many seemingly disparate scientific investigations, from conductive cover stitches to covert speech brain-computer interfaces. Key advances in pediatric access technologies as well as relatively obscure contributions will be highlighted, illustrating how they have collectively and synergistically provided the scaffolds for our present research efforts.
Biography
Tom Chau is a distinguished senior scientist at Bloorview Research Institute and a full professor in the Institute of Biomedical Engineering at the University of Toronto. His research investigates novel access pathways for non-speaking children and youth with severe physical impairments. He has published many journal articles relating to pediatric rehabilitation engineering and has developed numerous assistive technologies aimed at enabling communication and control for children with disabilities. Dr. Chau's contributions to childhood disability research have been recognized nationally and internationally.
Friday, November 8
Dr. Darcy Fehlings, senior clinician scientist and developmental pediatrician
Brenda Agnew, parent and family advocate
Dystonia in Cerebral Palsy: Driving Global Change in Care over Two Decades
Working together Brenda Agnew (parent stakeholder) and Darcy Fehlings (clinician scientist) will discuss why dystonia is important to recognize and manage for individuals with cerebral palsy. The presenters will take the audience on a 20-year journey from clinicians and families missing or not knowing their child had dystonia to driving change in the clinical and research arena by the development of the Hypertonia Assessment Tool and leading the development of an international clinical practice guideline and AACPDM (American Academic in Cerebral Palsy and Developmental Medicine) ‘Dystonia in CP” Care Pathway on pharmacologic and neurosurgical management.
Biography
Dr. Darcy Fehlings
Dr. Darcy Fehlings is a developmental pediatrician and professor in the Department of Paediatrics at the University of Toronto. She is a senior clinician scientist in the Bloorview Research Institute at Holland Bloorview Kids Rehabilitation Hospital. Her clinical and research work focuses on the innovation and evaluation of interventions for children with cerebral palsy including hypertonia interventions, early detection, constraint therapy, dystonia and pain management. She has led the AACPDM Care Pathways for ‘Dystonia in CP’. She has held positions as the inaugural head of the U of T Division of Developmental Paediatrics (2006-2022) and president of the American Academy of Cerebral Palsy and Developmental Medicine (2015).
Brenda Agnew, parent and family advocate and marketing manager, Gluckstein Lawyers
Brenda Agnew is the proud mother of two sons, Chase and Maclain. Her younger son Maclain is a former 29-week-old twin-to-twin transfusion survivor. He has quadriplegic dyskinetic cerebral palsy and profound hearing loss as a result of a condition known as Kernicterus, a brain injury that results from untreated jaundice. Since Maclain was diagnosed, Agnew has been a tireless in advocating for better systems and programs for children with neurodiverse needs. There is much personal empowerment in having the ability to provide substantial input on how policies, programs, and priorities are created and communicated, and how we incorporate and engage families. She is grateful daily to have been afforded continuous opportunities to create, foster, and grow relationships with professionals, fellow parents and caregivers.
Agnew is an active member of volunteer organizations such as CP-Net, CHILD-BRIGHT Citizen Engagement Committee, PONDA, the AACPDM Community Council and is a director on the board of directors for Easter Seals Ontario.
In addition to her role with Gluckstein Lawyers, Agnew is also a school board trustee with the HCDSB in her second term, where she is also the chair of the Special Education Advisory Committee.
Dr. Jan Andrysek, senior scientist, Bloorview Research Institute and associate professor, University of Toronto, Institute of Biomedical Engineering
Expanding the world of possibility
This talk covers Dr. Jan Andrysek’s journey within the BRI over the last 20+ years, and how the institute has grown and expanded, and my research program alongside it.
Biography
Dr. Jan Andrysek is a senior scientist at BRI and an associate professor at the University of Toronto's Institute of Biomedical Engineering. His research focuses on developing assistive technologies, with a focus on prosthetic and orthotic limb design and fabrication, wearables for rehab, and tools to measure mobility and physical activity. He also studies the global impact of prosthetic rehabilitation.
This session will highlight the notable accomplishments of Holland Bloorview’s Research Family Engagement Committee and the work underway to boldly re-imagine the role of the committee in advancing research for all children with disabilities. This session will also feature a lived experience talk and musical performance.
Dr. Tim Ross, Scientist, Assistant Professor, Bloorview Research Institute, Scientist Co-Chair, Research Family Engagement Committee
Dr. Tim Ross is a scientist in the Bloorview Research Institute, assistant professor in the Department of Geography and Planning and the Rehabilitation Sciences Institute at the University of Toronto, and he is the scientist co-chair of the Research Family Engagement Committee. Dr. Ross leads the Engagement & Planning for Inclusive Communities Lab, which explores experiences of disability and ways to advance more accessible, inclusive, and diverse communities. Four of his key research areas are: (1) education access, (2) transportation and mobility, (3) inclusive play, and (4) institutional ableism.
Questions about ableism and its normalcy within the planning and design of our built environments, services, and systems are central to Dr. Ross’ research.
Suzanne Jorisch, Family Leader Co-Chair, Research Family Engagement Committee
Suzanne Jorisch is a financial executive who has over 20 years of senior management experience. She is exceptionally motivated to seek, identify, develop, and implement organizational improvements, with a focus on quality, profit opportunities, and cost savings. Her areas of expertise include accounting and administrative management, human resources and payroll management and financial planning, budgeting, reporting, and analytics. Jorisch has been an extremely active part of our Holland Bloorview Family Leadership Program since 2013 serving on numerous committees including the Hospital Board of Directors, Business & Audit Committee, Research Teaching and Learning Committee, Quality Committee, Family Advisory Committee, and the Research Family Engagement Committee, among others.
Adrian Anantawan, acclaimed violinist, associate professor, Berklee College of Music
Adrian Anantawan is an acclaimed violinist and associate professor at Berklee College of Music. He holds degrees from the Curtis Institute of Music, Yale University and Harvard Graduate School of Education where he studied with musical greats like Itzhak Perlman and Pinchas Zukerman. Adrian has performed at prestigious venues, including the White House, the United Nations and the Olympic Games. In Canada, he has been a soloist with major orchestras such as those in Toronto, Vancouver and Montreal.
A passionate advocate for accessibility in the arts, Adrian co-founded the Virtual Chamber Music Initiative and the Music Inclusion Program, which help children with disabilities engage with music. Among his many honours are a Juno nomination, induction into the Terry Fox Hall of Fame, and the Queen’s Diamond Jubilee Medal for his contributions to both music and disability advocacy.
As a former out-patient client at Holland Bloorview, the orthotics & prosthetics team built a customized prosthetic so that he could play the violin when he was a child. Inspired to give back to the hospital, he was introduced to cutting-edge technology developed by the PRISM Lab, Virtual Music Instrument, a device that translates movements into music. Together with a team of doctors, musicians, music therapists and educators, he explored the device’s potential for kids with disabilities to express themselves through music.
Proudly sponsored by the Ward Family, the Pursuit Award recognizes PhD students for their outstanding achievements in childhood disability research.
Patricia Kipkemoi
From Genes to Behaviour: Diagnosis, genetic and phenotypic architecture and environmental influences of neurodevelopmental disabilities
In many parts of Africa, the diagnosis of neurodevelopmental disabilities (NDDs) such as autism and intellectual disability is challenging, in part, due to a lack of culturally appropriate and adequately standardised screening and diagnostic tools. The validation of screening and diagnostic tools is crucial as we move towards better care for affected families. Many recent studies have tried to understand the genetic causes of these conditions, mostly in high-income countries including North American and Western European populations but rarely in the context of African populations. Understanding how common and rare genetic variations relate to neurodevelopmental traits not only helps bridge this gap but also paves the way for the development of targeted interventions and management strategies for affected children. This talk will explore several key areas: the importance of validating autism screening and diagnostic tools for phenotypic characterization, the genetic, phenotypic architecture associated with NDDs in Kenya, and the prenatal, perinatal, and postnatal factors linked to autism in children from Kilifi and Mombasa counties in Kenya, as well as Cape Town, South Africa. To close out the talk, Kipkemoi will contextualize our findings within current global discourse on NDDs and highlight areas for future research that can build on the insights gained from this work.
Biography
Patricia Kipkemoi is a final-year PhD candidate with the KEMRI-Wellcome Trust Research Programme, Kilifi, Kenya and an incoming post-doctoral researcher with Aga Khan University, Nairobi, Kenya. Her research focuses on neurodevelopmental disorders (NDDs) in low-resource settings, specifically in African populations. Her work has involved validating screening tools, understanding environmental and genetic risk factors, and contributing to the NeuroDev Project, which explores the genetic and phenotypic architecture of NDDs in Kenya and South Africa. Kipkemoi was nominated to be a research fellow in a program called Global Initiative for Neuropsychiatric Genetics Education in Research (GINGER), which trains young African researchers in neuropsychiatric genetics analysis. Through the GINGER program, facilitated by Harvard TH Chan and the Broad Institute, she received training in epidemiology, biostatistics, and statistical genetics, graduating from the program in May 2024. In 2022, she was nominated to be an autism spectrum disorder representative for the Psychiatric Genetics Consortium (PGC)- Africa working group. This role involves forming a database of autism-related studies on the African continent and diaspora.
Dr. Madison Giles
We’re not some cute little naïve innocent beings”: Exploring the sexuality of youth with physical disabilities
Dr. Madison Giles will share the stories of youth with physical disabilities, focusing on their sexual identities, needs, hopes, dreams, and desires. These stories come from her PhD research where she used an arts-based methodology to highlight unique forms of knowledge and employed an Intersectional framework to center youth with intersecting identities, such as Black, Indigenous, and youth of colour, as well as LGBTQ+ youth. Through the youth’s stories, Giles saw how society limits their sexuality by largely viewing them as vulnerable and not fully sexual beings. The youth had to navigate and resist this desexualization and find creative ways to assert their value and desirability as sexual beings.
Biography
Dr. Madison Giles is a project manager at the Sex Information and Education Council of Canada. She holds a PhD in public health sciences from the University of Toronto’s Dalla Lana School of Public Health and a postdoctoral fellowship from Unity Health Toronto. Gile's research explores the complexity of human sexuality using critical qualitative and arts-based methodologies. In addition to producing scientific publications and presentations, she is committed to co-creating community-facing and youth-focused products, such as art galleries and digital storybooks. Giles’s research always involves people with lived experience, aiming to examine how power operates over others while simultaneously acknowledging the power we hold with others.
Dr. Marlee Vandewouw
Characterizing diversity in brain function and structure to advance personalized health
Despite having distinct diagnostic labels, neurodevelopmental conditions such as autism, attention-deficit/hyperactivity disorder, and obsessive-compulsive disorder vary significantly in their brain and behaviour within each condition, and also overlap across conditions. This highlights the need for personalized health approaches, where care is tailored to each individual’s unique biology, rather than their diagnostic label. In this talk, Dr. Marlee Vandewouw will present work from her thesis which used state-of-the-art approaches to deepen our understanding of neurobiological variability and improve our ability to predict adverse outcomes in neurodiverse children and youth. This work paves the way for more precise and effective approaches to care, ultimately improving outcomes for neurodiverse children.
Biography
Dr. Marlee Vandewouw has over eight years of experience in neuroimaging research, where her work has primarily focused on understanding the neurobiology of neurodevelopmental conditions. She recently obtained her doctoral degree from the Institute of Biomedical Engineering at the University of Toronto under the supervision of Dr. Azadeh Kushki. Here, her work focused on characterizing neurobiological diversity and improving our ability to predict adverse outcomes in neurodivergent children and youth. Ultimately, her work has taken an initial step towards personalized health, where care is tailored to an individual’s biology, strengths, and needs.
Breakout Session #1
Global Impact and Opportunities for Growth in Pediatric Disability, Rehabilitation and Neurodevelopmental Conditions
Dr. Evdokia Anagnostou, vice president, research, and director, Bloorview Research Institute
Bio:
Dr. Evdokia Anagnostou, MD, is the Vice President of Research and Director of the Bloorview Research Institute. She is a senior clinician scientist, co-lead of the Autism Research Centre , Canada Research Chair in translational therapeutics in autism spectrum disorder (ASD) and the inaugural Dr. Stuart D. Sims Chair in Autism. Dr. Anagnostou has dedicated her career to challenging the field of neurodevelopmental disorders (NDDs) to rethink diagnostic categories and focus on underlying biology rather than labels. With the goal of precision medicine to ensure the best care and treatment for all children and families, Dr. Anagnostou has revolutionized traditional ways of thinking by redefining individual patterns of disease, which will lead to individualized treatments and more meaningful and healthier futures for all.
Breakout Session #2
A Journey Towards Becoming a Learning Health System
This session will focus on the drivers of a learning health system.
- Introduction and strategic commitment to a Learning Health System
- Data as a driver
- Implementation as a driver
- Clinicians and community partners as a driver
- Knowledge to action cycle as a driver
Panelists:
- Dr. Laura Bowman, project manager, research & evaluation, Holland Bloorview Kids Rehabilitation Hospital
- Dr. Azadeh Kushki, senior scientist, associate professor, BRI
- Dr. Sarah Munce, implementation scientist, BRI
- Dr. Melanie Penner, senior clinician scientist, associate professor, Bloorview Research Institute
- Nadia Tanel, senior director, communications and strategy, Holland Bloorview Kids Rehabilitation Hospital
Moderator: Dolly Menna-Dack, senior director, collaborative practice, Holland Bloorview Kids Rehabilitation Hospital
Breakout Session #3
Transforming Pediatric Innovations into Global Solutions: Practical Advice for Bridging Research and Industry
Join our expert panel as they share insights on successful collaborations between academic institutions and industry to bring research innovations to market. The discussion will highlight key success criteria and lessons learned from these partnerships, offering practical strategies for securing funding, including navigating grants and public-private investments. Panelists will also explore how organizations can streamline processes to better align critical success factors—such as intellectual property management, collaboration models, and market readiness—making the commercialization of research outputs faster and more efficient. Expect audience engagement, actionable tips and real-world examples from leaders in the field.
Panelists:
- Sharon Wong, director of commercialization, BRI
- James Elson, associate vice president, product development, Consumer Brands Division at Canadian Tire Corp.
- Amirali Toosi, director of biomedical engineering, Myant
Moderator: Christa Studzinski, director, business development & partnerships, Ontario Brain Institute
Bios
Amirali Toossi, Director of Biomedical Engineering, Myant
Amirali Toossi is the Director of Biomedical Engineering at Myant in Mississauga and an Adjunct Assistant Professor in the Department of Medicine at the University of Alberta. With over 10 years of R&D experience in industry and academia, focused on developing implantable and wearable medical devices, he is currently leading a team at Myant developing novel bidirectional smart textile interfaces with the human body and garments-as-medical-devices.
James Elson, Associate Vice President, Product Development, Consumer Brands Division at Canadian Tire Corp.
With over two decades of experience in product development, technology innovation, and operational strategy, James Elson is a dynamic leader recognized for bringing complex concepts to market with precision and scale. As Associate Vice President of Product Development at Canadian Tire Corporation, James has driven product revitalization and overseen strategic growth initiatives that transform legacy brands, launched new or acquired brands, and built market presence while leverage advanced technologies and consumer insights. James joins today’s panel to share practical insights on transitioning from the lab to the field, market scoping, product-market fit, development and commercialization strategies, financial models, as well as operational, compliance and process needs, offering actionable advice for organizations seeking to turn innovative research into commercial solutions.
Sharon Wong, Director of Commercialization, Holland Bloorview Kids Rehabilitation Hospital
Sharon has spent the last 24 years working in the field of health sciences. In 2009, Sharon co-founded Zulimar, a successful company that creates digital solutions for continuing medical education and clinical-decision support. She exited the company in 2017 before joining Holland Bloorview Kids Rehabilitation Hospital. Currently, as Holland Bloorview’s first director of commercialization, Sharon works closely with its foundation and research institute to support knowledge transfer, establish industry partnerships and commercialize innovative products that benefit children and youth with disabilities and their families.
Christa Studzinski, Director, Business Development & Partnerships, Ontario Brain Institute
Christa Studzinski has spent the last 12 years working at the Ontario Brain Institute, where she creates partnerships that help get evidence-based solutions into the community, where people are living with and receiving care for their brain disorders. As the Director of Business Development and Partnerships, she is engaging patient and community groups in the co-development and real-world validation of neurotechnologies; and working with multinationals to help them de-risk their investments into neurotech. In her previous role at OBI, she helped launch the Integrated Discovery Programs, which include CP-NET and POND. Prior to joining OBI, she completed post-doctoral fellowships at the University of Kentucky and the University of Toronto. While completing her PhD in Pharmacology from the University of Toronto, she also co-founded a contract research organization and participated in research that led to the FDA approval of a medical food for Alzheimer’s disease.
Breakout Session #4
Setting Research Priorities for Minimally/Non-verbal individuals
This session is open to researchers, clinicians, and families who are interested in research related to non/minimally verbal individuals. This is an area that we are interested in exploring further at the BRI. The purpose of this interactive breakout session is to gather your input, to get as many perspectives as possible and to identify research priorities for minimally and non-verbal individuals.
Panelists:
- Dr. Jessica Brian, psychologist and senior clinician scientist, BRI
- Salina Eldon, project manager, ECHO Autism HUB team, Holland Bloorview
Bios
Dr. Jessica Brian, Psychologist and Senior Clinician Scientist, Bloorview Research Institute
Dr. Jessica Brian a clinical psychologist and senior clinician-scientist at Holland Bloorview, where she co-leads the Autism Research Centre at the Bloorview Research Institute. Jessica is also Associate Professor, University of Toronto, Department of Paediatrics, with affiliations at SickKids and the Ontario Institute for Studies in Education (OISE/UofT). She specializes in neurodevelopmental disabilities with a particular interest in early identification and intervention in autism spectrum disorder (ASD). Jessica has spent the past 25 years collaborating in a pan-Canadian longitudinal research program that explores the development of children at elevated likelihood for ASD (Infant Siblings Study), who are followed from infancy into adolescence. Informed by this early identification work, Jessica co-developed the Social ABCs, a caregiver-mediated intervention for toddlers with emerging autism or related challenges. Jessica has a long history of teaching graduate students, clinical trainees, and community providers in topics related to early detection, assessment, diagnosis, intervention, and supports for autistic children and youth and their families.
Salina Eldon, Project Manager, ECHO Autism HUB Team, Holland Bloorview Kids Rehabilitation Hospital
Salina is the Project Manager of ECHO Ontario Autism at Holland Bloorview, an online education program for clinicians diagnosing and caring for autistic children and youth. She has over 25 years of experience working with autistic individuals in various roles including early childhood educator, psychometrist, manager of a school-based day treatment program, and research coordinator. In the past, she also helped to launch and run a community-based music program for neurodivergent adults, along with a group of local Toronto professional musicians. She has also organized and led online trainings for families and professionals her home country of The Bahamas. Her wide range of experience has enabled her to become a strong advocate for the inclusion of all individuals in all areas of society.
Each year, the Bloorview Research Institute welcomes over 100 graduate and doctoral students, otherwise known as trainees, from universities across Canada and beyond to study alongside some of the world’s leading scientists and gain first-hand knowledge on the latest advancements in childhood disability research. The BRI symposium is one of several events where these trainees can showcase their research to a broad audience.
This year’s presenters are:
Towards developing a digital workflow for transradial prostheses
Presenter: Calvin Ngan
Authors: Calvin Ngan and Jan Andrysek
Gamified Assessment: Extracting and characterizing reach performance in children with cerebral palsy using data collected from Bootle Blast, a movement tracking video game
Presenter: Sorsha Asady
Authors: Sorsha Asady, Elaine Biddiss, Ajmal Khan, Soowan Choi
Applying an implementation science framework to pediatric autism assessment: Facilitators and barriers in Ontario
Presenter: Zahra Wakif
Authors: Zahra Wakif, Lisa Kanigsberg, Genevieve Ferguson, Melanie Penner; Project ECHO AuDIO Team
Development and Validation of a Textile-Based Prosthetic Socket Pressure Sensing System
Presenter: Thierry Dugas
Authors: Thierry Dugas and Jan Andrysek
Analysis to Examine Phenotypic and Physiological Correlates to Irritability in Autism
Presenter: Sara Alatrash
Authors: Sara Alatrash, Tithi Paul, Brendan Andrade, Suneeta Monga, Jessica Brian, Evdokia Anagnostou, Melanie Penner, Atena Roshan Fekr, Azadeh Kushki
Exoskeleton-assisted physiotherapy: feasibility and outcomes associated with usage in school and outpatient settings for children with cerebral palsy
Presenter: Stefanie Bradley
Authors: Stefanie Bradley, Virginia Wright, Anne Kawamura, Tom Chau
Engaging Clinicians and Youth in the Development of a Novel Multidomain Assessment and Rehabilitation Tool for Concussion
Presenter: Josh Shore, Danielle DuPlessis, Brian Xiao
Authors: Josh Shore, Danielle DuPlessis, Brian Xiao, Andrew Lovell, Pavreet Gill, Emily Lam, Fanny Hotze, Ajmal Khan, Stephanie McFarland, Andrea Hickling, Kylie Mallory, Michael Hutchinson, F. Virginia Wright, Nick Reed, Sarah Munce, Elaine Biddiss, Shannon Scratch.
Home-based transcranial direct current stimulation to promote self-regulation in children with autism spectrum disorder (ASD)
Presenter: Norna Abbo
Authors: Norna Abbo, Trina Mitchell, Evdokia Anagnostou, Brendan Andrade, Deryk Beal
At the Bloorview Research Institute, scientists, researchers and trainees are co-creating transformative, equity-driven research with clients and families to enable healthy futures for children and youth living with developmental differences and disabilities, and their families in Canada and worldwide.
Please stop by and have a chat with our presenters to learn more about their incredible research in the Coriat Atrium on November 7 from 1 to 2 p.m. and on November 8 from 12:30 to 1 pm.
POSTER | AUTHORS | TITLE | POSTER PRESENTER |
1 | Dr. Sally Lindsay, Natanela Dain, Shaelynn Hsu
| Exploring the employment experiences of young adults with multiple minoritized identities: A qualitative study focusing on race and non-apparent disabilities | Dr. Sally Lindsay |
2 | Dr. Sally Lindsay, Sarah Leo, Janice Phonepraseuth, Lily Cao
| Experiences and factors affecting poverty among families raising a child with a disability: A scoping review
| Janice Phonepraseuth
|
3 | Dr. Sally Lindsay, Janice Phonepraseuth, Sarah Leo
| A systematic review of racial health inequities among children and youth with physical disabilities
| Sarah Leo
|
4 | Madhu Pinto, Gillian King, Kinga Pozniak, Elizabeth Chambers, Rachel Martens, Sarah Wellman-Earl, Olaf Kraus de Camargo, Dayle McCauley, Rachel Teplicky, and Peter Rosenbaum
| What Do Today’s Parents Want and Need from Healthcare Services?: Developing a New Measure of Family-Centred Service
| Gillian King
|
5 | Narges Abdeahad, Sally Lindsay
| The role of race and ethnicity in leisure participation among children and youth with disabilities: A systematic review
| Narges Abdeahad
|
6 | Marina Petrevska, F. Virginia Wright, Selvi Sert, Elaine Biddiss
| Developing and Testing a New Feedback-based Therapy Exercise Game Using Design Thinking
| Marina Petrevska
|
7 | Sophia Lenz, Sarah J. Goodman, Ajilan Sivaloganathan, Cheryl Cytrynbaum, Jesiqua Rapley, Emma Canning, Rosanna Weksberg, Danielle Baribeau
| Psychopharmacology in children with genetic disorders of epigenetic and chromatin regulation: clinical description and analysis of potential biomarkers
| Sophia Lenz
|
8 | Carly Cermak, Jesiqua Rapley, Melissa Penner
| Learning about family experiences in accessing an autism diagnosis in Northern Ontario: Preliminary findings
| Carly Cermak, Jesiqua Rapley
|
9 | Rushmita Alam, Narges Abdeahad, Sally Lindsay
| Exploring the clothing experiences of children and youth with physical disabilities A Scoping Review
| Rushmita Alam |
10 | Seyed Hassan Tonekaboni, Alana Iaboni, Brett Trost, Zsuzsa Lindenmaier, Azadeh Kushki, Elizabeth Kelley, Jessica Jones, Muhammed Ayub, Stelios Georgiades, Robert Nicolson, Elim Chan, Andrada Cretu, Jessica Brian and Evdokia Anagnostou
| Comparative Analysis of Phenotypic and Genotypic Characteristics in Regressive and Non-Regressive Autism.
| Seyed Hassan Tonekaboni
|
11 | Testani, D.A, Simon, T., King, G., Munce, S., Shearer, H.M, Fehlings, D.
| Effectiveness of clinician supported, parent-mediated participation promoting interventions for children with physical disabilities: A Systematic Review
| Daniela Testani
|
12 | Vishal Pendse, C.C. Ngan, Jan Andrysek | Creation of a smart template library for digital transradial prosthetic socket design
| Vishal Pendse
|
13 | Christina Ippolito, Lathushikka Canthiya, Andrea Hoffman, Laura McAdam | A retrospective assessment of a multidisciplinary intensive inpatient rehabilitation program for children with Spinal Muscular Atrophy
| Christina Ippolito
|
14 | Ledycnarf Holanda, Stefanie S. Bradley, F. Virginia Wright | Qualitative perspectives of a school-based physiotherapist team about the use of an overground powered exoskeleton in a primary school setting for children with cerebral palsy
| Ledycnarf Holanda
|
15 | Danielle DuPlessis, Sara Marshall, Willow Barton, Mary Desrocher, Shannon Scratch
| The Teach-ABI Professional Development Module: A Mixed Method Analysis Of Change In Open-Ended Case Study Responses | Danielle DuPlessis
|
16 | Van Slothouber, Sally Lindsay | Identity Negotiations of Multiply Marginalized Youth with Disabilities
| Van Slothouber
|
17 | Humna Siddiqui, Alyssa Henderson, Ivetta Lewis, Melanie Penner | Utilization of Emergency Department Services among Children with Neurodevelopmental Diagnoses: A Scoping Review
| Humna Siddiqui
|
18 | Amanda Chan, Élyse Comeau, Sally Lindsay, Tim Ross | A Scoping Review of Disabled Students’ Schoolyard Experiences
| Amanda Chan
|
19 | Bisman Mangat, Lauren Switzer, Sophie Lam-Damji, Liz Cambridge, Darcy Fehlings | Early Detection and Intervention of Cerebral Palsy (EDIT-CP): A Knowledge Implementation Project
| Bisman Mangat
|
20 | Christina Tsetsos, Evdokia Anagnostou, Gregory Costain, Elise Heon, Ajoy Vincent, Jacob Vorstman, Carolina Gorodetsky, Jim Dowling, Mark Bedford, Kimberly Amburgey, Danielle Baribeau | A single patient trial of Fluoxetine in KCNC1 related disorder
| Christina Tsetsos
|
21 | Christine Provvidenza, Ashleigh Townley, Sarah Holman, Moira Peña, Jaden Chong, Shauna Kingsnorth | The Autism Occupational Therapy Coach Program: Promoting Neurodiversity Affirming Practices
| Moira Peña, Jaden Chong
|
22 | Amy McPherson, Shauna Kingsnorth, Jonathan Leef, Ann Fudge Schormans, Shaniff Esmail, Alan Santinele Martino, Hilary Brown, Loree Erickson, Emily Cox, Heather Cobb, Jessica Wood & Madison Giles | We Are Sexual Too: A Partnership to Support the Intimate Citizenship of Youth With Disabilities Across Canada
| Amy McPherson
|
23 | Emily Cox, Gavi Engel-Yan, Cameron Stewart, Emily Mazur, Alexandra Rego, Francis Routledge, Christine Provvidenza, & Amy McPherson
| We Are Sexual Too: Co-creating resources for youth, with youth
| Emily Cox
|
24 | Lisa Kakonge, Hannah Boamah, Jessica Tomarchio
| Navigating Digital Communication: Co-Creating a Survey on Computer-Mediated Communication (CMC) in Adolescents with Acquired Brain Injury (ABI)
| Lisa Kakonge, Hannah Boamah, Jessica Tomarchio
|
25 | Selvi Sert, Daniela Chan-Viquez, Marina Petrevska, Ilana Naiman, Ajmal Khan Elaine Biddiss | Context-Driven Evaluation and Iterative Development of Bootle Blast
| Selvi Sert
|
26 | Eisha Amjad, Lauren Switzer, Cynthia B. de Medeiros, Amber Makino, Jenna Doig, Cecilia Lee, Donald J. Mabbott, Darcy Fehlings | Interim Feasibility Analysis of Metformin for Motor and Cognitive Improvement in Children with Cerebral Palsy: A Feasibility Study
| Eisha Amjad
|
27 | Yuan Dou, Jason Leung, Tom Chau | Validation of Dry Textile EEG Electrodes for Brain-Computer Interface Applications
| Yuan Dou
|
28 | K. Meng, C.C. Ngan, H. Sivasambu and J. Andrysek | 3D Printing Method for Upper-Limb Diagnostic Sockets
| Katrina Meng
|
29 | Niloufaralsadat Hashemi, Deryk Beal, Tom Chau | Transforming Therapies with Insights into Cortical Neural Dynamics: Unveiling Distinct Signatures of Action Observation, Imitation, and Execution in Children with Cerebral Palsy and Hemiplegia
| Niloufaralsadat Hashemi |
30 | Roshan Ahmad, Michaela Harper, Andrea Hickling, Alexa Irvin, Pavreet Gill, Shannon Scratch, Kylie Mallory | Access to virtual interdisciplinary pediatric concussion services within the Persistent Concussion Clinic: A retrospective chart review
| Kylie Mallory
|
31 | Fatima Karim, Andre Telfer & Evdokia Anagnostou | Predicting Adaptive Function in Neurodevelopment Conditions Using Computer Vision Readouts of Motor Activity
| Fatima Karim
|
32 | Bisola Olaseni, Victoria Rombos, Zainab Salami, Genevieve Ferguson, Melanie Penner
| A Comprehensive Characterization of Holland Bloorview's Extensive Needs Service Research Participants
| Bisola Olaseni
|
33 | Adolfo Sebastian Silva, Jan Andrysek | Development of a Music-Based Wearable Biofeedback System to Improve Lower Limb Amputee Gait Symmetry
| Adolfo Sebastian Siva
|
34 | Azra Delpak, Evdokia Anagnostou | Cognition and Executive Function in Aging Autistic Adults
| Azra Delpak
|
35 | Laura Bowman, Carolyn McDougall, René Doucet, Brendon Pooran, Jeannette Campbell | Funding equitable access to ‘start-early’ employment supports for youth with disabilities: A cost-benefit model
| Laura Bowman, Carolyn McDougall
|
36 | Michael S. W. Lam, Alexander Hodge, Elaine Biddiss | Assessing Player Engagement Across Difficulty Adjustment Methods in a Video Game for Teaching Music-Making to Children with Diverse Abilities
| Michael S. W. Lam
|
37 | Dowds,E., Zwaigenbaum,L., & Brian, JA. | A Pilot Evaluation of the Novel Infant Social ABCs Caregiver-Mediated Intervention
| Erin Dowds
|
38 | Eric Wan, Jason Lerch, Margot Taylor, Alana Iaboni, Christopher Hammill, Bilal Syed, Jessica A. Brian, Elizabeth Kelley, Muhammad Ayub, Jennifer Crosbie, Russell Schachar, Stelios Georgiades, Rob Nicolson, Evdokia Anagnostou, Azadeh Kushki | Phenotypic and Sociodemographic Correlates of Cognitive-Adaptive Functioning Discrepancy in Neurodivergent Children Using A Machine Learning Approach.
| Eric Wan |
39 | Daoud, S., Bernardi, K., Brian, J | Does baseline expressive language ability predict early intervention outcomes? Evidence from the Social ABCs | Sara Daoud & Kate Bernardi
|
40 | Tithi Paul, Molly Friedman, Annie Dupuis, Harshit Bokadia, Melanie Penner, Azadeh Kushki | A Virtual Dental Office Experience for Children with Autism – A Randomized Controlled Trial
| Tithi Paul
|
41 | Christine Muscat, Sara Marshall, Shannon Scratch | Teaching Educators about Acquired Brain Injury (TeachABI): Through Hospital to School Transition | Christine Muscat |
42 | Marlee Vandewouw, Azadeh Kushki, Jennifer Crosbie, Russell Schachar, Stelios Georgiades, Robert Nicolson, Elizabeth Kelley, Muhammad Ayub, Jessica Jones, Paul Arnold, Jason Lerch, Margot Taylor, Evdokia Anagnostou | A transdiagnostic and data-driven approach for characterizing rich-club development in neurodivergence | Marlee Vandewouw |
44 | Danielle Baribeau, Evdokia Anagnostou, Dan Coury, Karen Kuhlthau, AWARE study investigators | Comparative Effectiveness of Pharmacologic Management of ADHD in Children and Youth with Autism Spectrum Disorder (AWARE) | tbc |
45 | Jacob Ellegood, Antoine Beauchamp, Yohan Yee, Evdokia Anagnostou, Jason P. Lerch | Redefining Autism - Assigning Targetable Molecular Pathways to Transdiagnostic Subgroups Across Neurodevelopmental Disorders | Jacob Ellegood |