Designed in partnership with families
Holland Bloorview's research notification program, connect2research, is a secure database that that connects to limited information including date of birth, diagnosis, and contact information in a Holland Bloorview client’s electronic health record. The database will help identify and directly connect Holland Bloorview researchers with clients and families (past or present) who may be eligible for a research study. The goal of connect2research is to bring together clients, families, clinicians and researchers to research projects and studies.
All clients aged 21 and under that has received services at Holland Bloorview after May 1, 2011, or are aged 22 to 28 who have received services at Holland Bloorview in the last two years are automatically included in connect2research unless they choose to withdraw. Clients and families can remove themselves from the connect2research database, withdraw, or re-join the program at any time by calling us at (416) 425-6220 ext. 3000 or email firstname.lastname@example.org.
Participation in a research study or project is voluntary and can be decided on a study-by-study basis. Your decision to participate/not participate in a research study, or to be included/not included in the connect2research database, will not affect the care or services you receive at Holland Bloorview.
A client’s health record is protected information and at no time will it be visible to anyone besides your authorized care team. Limited information from your health record will be connected to the connect2research database using a secure, hospital approved software program.