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Assessing the frequency and experience of bullying or peer victimization in children with Muscular Dystrophy and Congenital Myopathies


One in 3 kids in Canada get bullied for reasons like how they look or talk. Kids get bullied in person and online. We think bullying might happen more to kids with Muscular Dystrophy/Congenital Myopathy, but no one has asked them about it yet. We want to find out how often kids with Muscular Dystrophy/ Congenital Myopathy get bullied and how it affects their life. If we know when, where and how kids with Muscular Dystrophy/Congenital Myopathy get bullied, we can help kids feel better if they get bullied, or even stop it. Sharing your experiences with us will help.


Dr. Laura McAdam, Medical Director, Child Development Program, and Neuromuscular and Rett Pathway pediatrician

Call to action

Have you been bullied? Have you been cyberbullied? Share your experiences with us.

Who can participate

Anyone 10-19 years old with a diagnosis of Muscular Dystrophy or Congenital Myopathy who can speak and read English or French are eligible to participate.

Funding agency

AHSC AFP Innovation Fund

What's involved

Youth participants will be asked to complete a 1-hour online survey, and parents/guardian participants will be asked to complete a 20-minute online survey. Some youth participants may be invited to complete an interview with or without their parent/guardian online with the researcher. Youth participants who complete an interview will receive a $20 gift card to thank them for their time.


Interested in participating

If you are interested in participating in this study or have additional questions, please contact Christina Ippolito at or 416-425-6220 ext. 6943 with your interest, and they will get back to your shortly. Contacting us does not obligate you or your child to participate in the study.

Learn more about this study