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Expectations and Roles in Children's Rehab

Expectations for rehab

Summary

We want to hear stories from parents/guardians and service providers about learning, setting, and negotiating ‘expectations’ for roles in children’s rehab. Stories may come from any time during your rehab journey.


Researcher(s)

Gillian King, PhD,Emily Nalder, Barry Trentham

Participate in this study

Have different expectations between you and service providers ever caused you to experience disappointment? Frustration? Surprise? Opportunity? Consider participating in our study.


Who can participate

Parents/caregivers who…

  • Self-identify as having or anticipating a significant and long-term role in supporting their child’s involvement in rehab.
  • Have a child between 3 to 25 (excluding children with a progressive health condition).
  • Are currently involved in children’s rehab services or were involved within the past three years.
  • Can communicate in English.

 

What's Involved

  • One hour-long interview. You choose where (home, onsite) and how (in-person, phone).
  • If applicable, your partner is welcome to be interviewed together or separately.
  • Conversation topics include 1) what roles you have expected yourself and your service providers to perform during your rehab journey; 2) how any new expectations for roles may have been changed or learned over time; and 3) strategies you and your service providers have used to resolve possible differences in expectations.
  • Before the interview, you can review sample interview questions and definitions of key terms.
  • After the interview, you will have an opportunity to review how the researchers have interpreted your story. You can let us know of any changes to make by phone, email, mail, or in-person.
  • Participants will receive a $50 gift card to thank you for their time.

Deadline

Once 10 parents/caregivers have been recruited.

 

Interested in participating

If you are interested in participating in this study or have additional questions, please contact Eric Smart at email: esmart@hollandbloorview.ca or phone: 416-425-6220 ext. 3157 with your interest, and he will get back to your shortly. Contacting us does not obligate you to participate in the study.

Funding Agency

Funds provided by Dr. Gillian King’s Canada Research Chair in Optimal Care for Children with Disabilities, funded by the Canadian Institutes of Health Research.

 



Learn more about this study




Please do not share any confidential information. The research team will contact you by phone or email to provide more details about this study.